life, music, sleep

After almost 20 years, a new song

I have had many songs that remind me of the love of my husband and me (1, 2, 3, awwwww 🙂 ). There was Time after Time by Cyndi Lauper, Hold me Now by the Thompson Twins, Panacea by Rush, there was a Led Zeppelin song (can’t remember the name now) – oh so many – I Want to Know what Love is by Foreigner, Just can’t fight this Feeling anymore by REO Speedwagon. Continue reading “After almost 20 years, a new song”

adhd, autism, health, medications, sleep

Welcome back to morning naps

Chris HAS been sleeping well at night for months, but was having more assertive (to put it mildly!) behavior during the day.  After struggling for several weeks (months?) with his having trouble obeying limits and NOT pulling on our arms where he wants us to go, pulling us along the road, hallways, kitchen, wherever something is that he wants, or trying to leave places he didn’t want to be, we called an emergency appt. with the psychiatrist.  He is a very caring doctor and listened to us and actually got to witness the “wanting to leave” behavior in his office, as did his staff in the waiting room (they called in an assistant for us to help as I had Ryan with me too). 

Continue reading “Welcome back to morning naps”

life, sleep, transcription

up early? NA, THERE’S A TIME CHANGE – it’s later than you THINK!

Ha! I got up at 5 to start my depo proofing (I’m weird and actually like getting up early – though I do feel the start of a cold from my sleep kinda being untypical lately – like staying up until 1 Friday night typing, sleeping until 7 on Saturday, then falling asleep at like 9 last night, sleeping until 12, trying to get up and proofread, then my son getting up and my having to go get him back to sleep, then getting up at 5 with the alarm (trying to take advantage of that time when he’s asleep don’cha know!)

Well, I looked with surprise at my computer and it said 6:30 (I’d been leisurely in the bathroom, checking my email, getting a cup of tea for the sore throat, for half hour before I looked at it) and I was discombobulated for a minute before I remembered, oh, spring ahead. Back to standard time here in the “northeastern midwest” of Ohio.

🙂

autism Ryan, chris, Christmas, Ryan, sleep

Yawn….. grrr.

I’m not very happy about the fact that Chris is up at 2:15 a.m. Just Sunday night he stayed up all night until 6 a.m. He seems to be doing this more often. Last year he started sleeping regularly July 15 with his hospitalization/med change. From july 15 until sometime at late fall he slept every night, then he had 1-2 nights he was up and he started suffering from his ear infections. All winter long if he stayed up it was usually an ear infection. It settled down again and he slept again for months and then last month (july) was up maybe 3-4 different nights – then, his swimmer’s ear. I wonder if he’s getting swimmer’s ear or ear infection again. My worst fear is that he’s losing the effect of his meds…. it’s happened before. (But not on these meds)

I am pretty tired and hope he sleeps soon – tomorrow is a very busy day and even at this point if he falls asleep right now I’m looking at about 4 1/2 hours sleep before I have to get up. We are going to Ryan’s last day family event day with an ice cream social. My mom is helping me. She is also watching kids so I can get a haircut. Then Thursday we’re going to a local waterpark (Rog will be off) for a fun day – Colleen had coupons from school. I’m not sure how much I really want to go but I know Colleen will enjoy it.

Ryan has had a lot of struggles at his summer preschool. He started hitting and even biting. They feel perhaps they didn’t have enough one-on-one attention for him. At his regular school he has a one-on-one. It will be interesting to see how his regular school year goes. His regular teacher in the school year seems to still be looking to make sure he’s not autistic, although the neurologist has ruled it out for the moment.

I really would like to run away somewhere, for just a little while….. only 1 more month (less than!) til Ryan goes back to school and I can take a BATH! or a NAP

DANG, i really wanted a shower, tonight too – was not counting on an all-night Chris party.

Ryan will be going to speech therapy 4 mornings a week in the school year. Since Colleen starts school at 8:00 instead of 9 I’ll be taking him to therapy at 8:30. It will be good to be done with that early and back home. He will get on his bus then M-Th. starting September 6 at 11:45 and if he rides bus home he’ll get home about 3. I’m hoping they let Colleen ride his bus – we’ll be in the situation where Chris gets home at 2:30-2:40, and I’m supposed to pick up Colleen at 2:30-2:45, and Ryan at 2:45. They said they’d probably have her go to Ryan’s class (they’re in the same school – preschool is at the middle school) and I hope they just let her ride his bus home. Or else I’ll have trouble being in two places at once!

Then I have to make decisions on several things – last year we did swimming on Monday, skating on Tuesday, counseling (for Colleen) on Wed., art (Colleen) on Thurs., and chiropractor (for all) on Friday. This year I would be adding on OT for Chris that is special at a center, possibly the same center for Ryan, and Colleen wants to do girl scouts and 4h Guinea pigs/small animals. Something will indeed have to give.

I am pretty sure I am not doing regular Christmas cards this year – I always do them and enjoy it SO much but this year for a little break I think I’m going to do holiday emails right at Thanksgiving, and then only send maybe 20-30 cards to family that doesn’t have email. A friend of mine and I plan to do some homemade goodies/crafts for Christmas gifts.

babbling to stay awake…….dori, not happy at 2:30 a.m.

 

Christmas, life, relocation North Carolina, sleep, work

Christmas!

 

Yes, I remember Thanksgiving is coming, and I’m ready – I LOVE Thanksgiving! But I just wanted to get my Christmas background done here before it’s almost Christmas and I have no time to do it!!!

We’re surviving okay – Chris is having a little trouble sleeping again which isn’t fun but it’s not as bad as it was. We have a problem with his ears being blocked up right now which we’re not sure how to deal with.

I’m trying to get Christmas shopping done early so I can just deal with all the school events, etc., in December! I already am starting Christmas card/newsletter prep. I hope to get them out by Dec 1!!!! We are overbooked with activities – here’s our schedule: (And remember our busy 2 3/4 year old is with -me ALL the time, doesn’t nap, and sleeps like 8-5 a.m. (I can’t go to bed at 8 because of other kids still being up until 10 or so).

Continue reading “Christmas!”

asperger's, autism, Ryan, sleep, speech delay, weight, work

Sunny Sunday

https://www.bing.com/images/search?view=detailV2&ccid=F39pFlpQ&id=8AA97F55C9DDA85C1DA73230FDFD595806D9A9D2&thid=OIP.F39pFlpQ41zRa-Edn8XDBwHaJT&mediaurl=http%3a%2f%2fimg4.wikia.nocookie.net%2f__cb20111217143120%2fdegrassi%2fimages%2fd%2fdc%2fManny123z.png&exph=392&expw=312&q=manny+degrassi+image&simid=608025956886450056&selectedIndex=4&ajaxhist=0
You’re Manny! (Manuela) You are clingy, yet cute.
Childish, yet can have some amazing pearls of
wisdom. You are the Sam to Emma’s Frodo. Cheer
up about Craig, dear. There are plenty more
boys who dig it when you call your stuffed
animals weird names!

Which Degrassi Girl are You?
brought to you by Quizilla

I love Degrassi – can’t wait for new season!  (watch on the “N” on our new digital cable which I don’t want to get rid of with our “broke-ness” now….)

Doing great, though I feel bad I missed church.  Chris fell asleep just moments before we left!  He is doing very well – naps every day still (a little earlier than expected today – usually he’s nodding off a bit at church which is a GOOD thing).  So next week I’ll give him the pill a little later.

Continue reading “Sunny Sunday”

autism, medications, Pans/Pandas, sleep

Monday and much better!

I can’t write too much today but wanted to update any readers that Christopher is doing MUCH better!  We are so grateful. He was hospitalized in a child psychiatric center a month ago and they regulated him on meds that are causing him to be much mellower and to SLEEP!  He sleeps about 6-8 hours a night and even often naps 2 hours a day now.  Boy what a difference!  He still has some challenging behaviors, but with sleep it is doable!

I will update more later, thanks for prayers!

2020

this was the beginning of the difference for Chris that lasted quite a while.  Ryan also got better in 2019 with a significant med addition.  Whether the cause was Pans/Pandas or something else we don’t know. 

2024 

Ryan had issues causing meltdowns again in summer of 23 going into Fall, which were finally narrowed down to severe constipation.  Daily and weekly meds were started and changed and adjusted and he still will have bouts of trouble, but after 2-3 severe bouts lasting into Spring of 2024, he seems to be again stable.

dori

autism, college, medications, music, Pans/Pandas, residency, sleep, waiver placement lists, waivers, weight

another old copied post…. things are not good :(

 

User: dori

Comments: feel like the straw that broke the camel’s back just happened – my aide just called and asked if I thought Chris would hit her today how do i know… – I said I didn’t know, he’s mostly hitting himself, but that he had hit me some especially on Saturday. She said she’s not coming today and that she’s going to call her office and explain how much he’s hitting her (he did hit her a lot on Thursday – she had a sore arm from it) and whether they still want her to come back – what do you think will happen?

2020 – yet another pans/pandas note… is that what this aggression was from??

I told Rog if I don’t have an aide I think we will have to have him go live somewhere else. We may do it this week. I’m so depressed. I can’t do this with no help. My mom did help me yesterday but he was hitting her and pushing her and she’s only 5’4″ and about 105 pounds so she can’t take too much -she’s also 61. My MIL isn’t even coming around to watch him anymore really – she’s pretty sick right now.

Continue reading “another old copied post…. things are not good :(“