Category: residency

autism, college, medications, music, Pans/Pandas, residency, sleep, waiver placement lists, waivers, weight

another old copied post…. things are not good :(

criscollrj

 

User: dori

Comments: feel like the straw that broke the camel’s back just happened – my aide just called and asked if I thought Chris would hit her today how do i know… – I said I didn’t know, he’s mostly hitting himself, but that he had hit me some especially on Saturday. She said she’s not coming today and that she’s going to call her office and explain how much he’s hitting her (he did hit her a lot on Thursday – she had a sore arm from it) and whether they still want her to come back – what do you think will happen?

2020 – yet another pans/pandas note… is that what this aggression was from??

I told Rog if I don’t have an aide I think we will have to have him go live somewhere else. We may do it this week. I’m so depressed. I can’t do this with no help. My mom did help me yesterday but he was hitting her and pushing her and she’s only 5’4″ and about 105 pounds so she can’t take too much -she’s also 61. My MIL isn’t even coming around to watch him anymore really – she’s pretty sick right now.

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autism, college, deafness, medications, organizing, Pans/Pandas, relocation, relocation North Carolina, residency, sleep, weight, work

a little update finally —

criscollrj

speak and spell
You’re a Speak & Spell!! You nerd, you. Just
because you were disguised as a toy doesn’t
mean you weren’t educational, you sneaky
bastard.

What childhood toy from the 80s are you?
brought to you by Quizilla

it is a lazy Sunday and I have SO much cleaning to do.

Last I wrote Chris was having a VERY VERY VERY bad time. We had an awful 4 months – February – sinus infections, ear infections with ear injury from hitting; March, 2 ear surgeries, missed most of the whole month off of school, plus drug reaction to Seroquel/Risperdol and withdrawal; April, entire month, I believe, from school, just about (he may have gone a week or so), had 1-2 more sinus infections; May, Tonsillectomy/Adenoidectomy, and finally had to start more meds as he was still being aggressive, self-injurious, and very very upset and not sleeping at all hardly (like 3-4 hours every few days is all); and June started horribly as well but FINALLY last 3-4 days his new meds (Tenex) is kicking in and he’s sleeping a little more and is seeming happier. FINALLY.

(2020 pans/pandas)

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autism, college, relocation North Carolina, residency, waivers, work

anyone familiar with north carolina?

criscollrj

We are again considering moving to North Carolina — I’m sure I’ve never posted it here (at least I don’t think so) as the last time we seriously considered it was 1997.
But with my husband needing to find a new job we are now thinking of it again – since there is a job move in the future anyway we’d like to consider whether to move to NC. We live in NE Ohio.

The reasons we have considered NC is that:

For one thing it is beautiful and close to the mountains and the ocean!

But another more important is that TEACCH for autism is centered down there, and though it is now up in Ohio too it started in NC and I have a feeling there may be more centralized schooling for Chris at all ages and perhaps adult centers as well — I seem to remember that there was, from when we traveled and visited there in 1997.

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autism, deafness, health, residency

From the hospital….

criscollrj

Ugh… a very nice hospital with awesome people but I’m tired of being here! But tomorrow I get to go home…

Chris damaged his ear with self-injurious behavior and had surgery on it 3/10. By 3/17 he had damaged it further as we could not control him to keep him from hitting/poking/punching his ear. 3/18 we spend 5 hours in the ER and 3/19 about midnight in the morning we were admitted to the area’s specialty children’s hospital. We have been here ever since (did go home for 20 hours from Sunday night to Monday afternoon).

Chris has adjusted fairly well now to the routine and the sitters and nurses and doctors. We urgently requested med regulation in addition to his ear attention as he was out of control at home, in the ER, and here at the children’s hospital. A large team is in place to help him and I believe they are helping as he is much calmer. He had ear surgery again Friday night. He shall probably be here about 2 weeks or so.

He was hitting everyone in our family on Thursday and it was completely out of control – he had even hit Colleen (9) and Ryan (2). So we had to get him immediately emergency help.

Prayers and thoughts requested as we continue on this path – he is also going to have a tonsillectomy soon and that will be a tough recovery. There is nowhere for him to go, either, to like a “nursing home/recovery” kind of stage so they’ll keep him here as long as possible and then try and have an aide set up for our house.

The Lord is in control… I just have to trust.

Blessings, dori