Made this journal for Colleen, look forward to her making it her own.
2020, this just links to her 7th grade pic? will look more into this later, have a feeling the journal link was deleted…
Living & Loving, Autism & Deafness
Our Journey with our loved ones and our lives
Made this journal for Colleen, look forward to her making it her own.
2020, this just links to her 7th grade pic? will look more into this later, have a feeling the journal link was deleted…
over 100 things…
In 1993 our world completely changed. Our first child was born in 1990 and everything was really pretty wonderful. There is a link here that partially describes those years, and also partially describes his early schooling. But we were content, with the usual new fairly young working parents’ problems – we wanted to buy a house, we wanted to get our bills paid off, and set up a nice retirement. Our goals for Chris and our future children were to be well adjusted, happy, healthy, and generous working individuals with creativity, goals, and a love of Christ.
This entry and a few following from my hand-written journal from 1994 shows were our lives deviated from this path:
10-20-94. Chris will be 4 in a month. Colleen will be 5 mos. in 9 days. Chris is doing good at school. He says 47 words. But none at school. He carries his bookbag into school which he wouldn’t do last year. He’s doing better with pitching, tantrums. He waves his hands a lot. But I had some nervous habits when I was little. I rubbed my fingers on my mouth. I love how he snuggles with me with a book, or a shiny bowl. He likes the reflections, and the banging (no-no!). He’s really good on the organ. He draws circles and lines and drew a “C.” And he played “Here’s the Church” finger game today.
Colleen rolled over on or right before her 4 mo. birthday. She rolled from back to front. Now she does it all the time but can’t get back over and gets mad! She’s napping now. She fell asleep on her tummy for the first time. She’s breastfeeding well – no food yet. More and more she’s feeding for just 4x a day. She smiles real wide and giggles and shrieks. She blows raspberries. She likes her walker now for a while. Is entranced with the “Happy Days” radio, weeble, star rattle.
We’re still looking for other employment. Praise God for another miracle – since the last time I wrote and said that Roger quit his night job, right after that he looked in the paper and saw the XX was hiring. He got his old job back at XX! And today I got a lead form Laura that Jim was leaving the office and may need a part-time transcriptionist. I spoke with him and he’s going to let me know. I hope so!
I’ve invited several of you to view our new blog, and thank you for visiting. We have a purpose here to share our story, and network with others, give some help, and perhaps receive some helpful information ourselves. I will try and write every week or so, and give the story of Christopher, Ryan, and Colleen, and hope that everyone enjoys reading and sharing. Please comment and I’ll try and comment back. I hope this is an enjoyable place for both family and friends, as well as a helpful site for the community. I hope to build an extensive page of links to help others just beginning on the road to special needs, or in the middle, or anywhere on their journeys.
Special prayers and thoughts to you all — blessings, dori
(2020, still my goal!!! I have had several years of interruptions of meeting this goal, but am still on the way to trying!!! I don’t regret having the other livejournal pages posted in here, as messy as they are, as they show more about our family than planned posts may have — though now I do need to do more posting as I hardly make any new posts. I hope once I have this edited and back “online” and publicized that I can start adding new posts again, and make a useful resource for others on the pages accompanying this blog.)
Comments: Good morning! So far I feel wonderful this morning! I had what I think was a mild migraine last night (no aura or anything) and it responded to Exedrin Migraine. I slept like 10 until 7 a.m. and got a shower. Everyone is still sleeping.
The web site of the conference information is http://www.ehhs.kent.edu/offices/PDO/conferences/index.html.
But I see that hardly any has been transferred yet of the 14 breakout sessions that they had. 3, I think. I plan to read over those three as those were ones I did not attend. We attended the keynote speech by Sean Barron and got the book he and Temple Grandin wrote. We got to speak to him and his girlfriend Barbara and had them sign the book. That was awesome! He ate at Quiznos with her – we saw them in the cafeteria – I wanted to take a picture but restrained myself 😉
http://s22.photobucket.com/albums/b326/criscollrj/moved%20in/?sc=3
My daycare assistance meeting is Tuesday. They tentatively approved me even though at first the lady scared me saying “oh, we don’t cover people who work at HOME.” Then I explained, you don’t understand – I have special needs children who RIP my headphones off my head and don’t permit me to work – I need to have some part-time child care set up in order to work. And I lost two jobs due to having to call in all the time with them being sick – I have to work at home for the flexibility of working around my children’s therapy and any sick time. Then she checked with her supervisor and called back and said her supervisor approved it. I still have to be approved financially though.
Today is our anniversary.
We’re going to an autism seminar ALL day Friday. I’m really looking forward to getting away without the kids for a while. They start camp Monday, also, a NICE 5-WEEK BREAK!
DORI
Comments: Hi – hope to post soon – we’re fine. Busy as always! Survived working all weekend last weekend transcribing. Getting my hearing aide eval next week.
Hope to read and post SUNDAY. Tried to post in the diet board but it wouldn’t let me ;P so —- I’ve been been on board since MONDAY. 5 days now. I’ve lost 1 1/2 pounds. It’s been about 7 months since I’d seriously watched and I’d gained 10 pounds back + 4 inches. So my goal is to lose that 10 pounds by the end of June. I’m doing Deal A Meal/Food Mover (when I find it 😉 to count portions. Still allowing myself some dessert in extreme moderation.
dori
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Time: Friday, 5/19/2006 6:44:02 PM (#81200)
User: DORI
Comments: I meant, I’m doing my Deal a Meal NOW, (just an older version of the Food Mover, with cards that you move instead of windows you close), until I find the Food Mover, which I find easier to deal with, but it is lost from the move 😉
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First I worked end of last week and all weekend, first transcription assignment I’ve accepted in almost a month.
Then I had appointments all week solidly! We are trying to use our insurance while we have it as well as getting all the kids school stuff done for the year.
Monday I went to my ENT/audiologist and found out that I too, in addition to my dad, 2 of my children, and 2 cousins, have neurosensory hearing loss. I’ll be fitted for hearing aids soon to join my children in this adventure. I have a moderate hearing loss but my right ear is much better; thus my good ability to still do the transcription.
Have a good rest of the week – dori
I LOST RYAN’S HEARING AIDS. I can’t find them anywhere. I know I brought them in the house; I remember taking them off of him (he has a clip) and I always put them in this one drawer, and they’re not there! I just looked through the whole house twice and am so aggravated. I don’t know if he took them out and was playing with them yesterday when I was working? I had to work like 1 1/2 hours more after he got home (not a good thing) and I hope he didn’t get into them and destroy them…. though I never once saw him with them. I just don’t know. (He takes them off when he gets home from school).
Ugh, so happy Rog has work now (same place since sept. 00). I’m going to keep my foot in the door with the jobs and do a little bit ($50 a month or so) just in case he gets laid off again. But right now, super. We’re having fun together, too.
Please send “finding” vibes my way for those hearing aides!
Love, dori
someone must have sent up an instant prayer for me as I FOUND THE HEARING AIDES! Ryan had them apparently as they were stuffed down in the couch. Little stinker….