I think about what it must be like for Chris, not being able to hear or speak. I don’t think about it often, though, because it will make me cry and look at things that seem unfixable. But I know God has a plan and a purpose, though it’s hard to see what it is. Continue reading “silence, and PDD”
Category: children
ouch–from fingers to computers
Our water froze up today so I had to try and keep my boys happy who due to their special needs don’t understand the meaning of NO BATH now IT’S BROKEN.
Chris got so frustrated he grabbed my hand in the process somehow jammed my finger. I can type fairly well after icing it, but it hurts still. I don’t know if it’ll hurt more tomorrow or less — sigh.
I guess it’s just sprained – would think I couldn’t type at all if it was broken, right? Writing is much harder – can’t write barely at all.
Continue reading “ouch–from fingers to computers”
Quick update – hecticness!
Just cutting and pasting and running on with my day—-
Continue reading “Quick update – hecticness!”
3 with autism diagnosis —
Ryan was diagnosed today with ADHD and also suspected PDD (pervasive developmental disorder, the umbrella term of autism that is most mild). He went ahead and gave the PDD diagnosis [which he suspected but didn’t know how much of the behaviors could be from his hearing loss] to enable him to have the most schooling and therapy. He should be able to go to all day school next year now for kindergarten in an autism class. I’m relieved about that in one way because I know he really needs the structure. On the other hand it breaks our hearts to have three children on the autism spectrum though, again, Ryan’s diagnosis could change as he gets older and more verbal and maybe it’ll change to Asperger’s like his sister who is just about typical with some vague shadow syndromes.
His ADHD seems rather severe and although he is only 4 he’s been prescribed medication – FocalinXR. I need to do some research on it. I’m afraid to give it so young- Colleen didn’t start on Ritalin and then Concerta until she was about 9, but she was never as hyperactive. He actually does very dangerous things – he has run into the street before and just yesterday he plugged in a waffle iron in the living room while I wasn’t looking for a minute and just left it heating. He didn’t ask me about it, just went, got it and plugged it in. He has become extremely hard to handle and even though he’s only 50 pounds it’s exhausting. 50 pounds is still 50 pounds. and on a day when 200-pound Chris is pulling me around – watch out.
They have always prescribed new meds for Chris that again I’m afraid to try. we think we’re going to try and hospitalize him to enable the med change – his last med change he had a psychotic reaction in 2004 (I think that’s the right word?) similar to tardive diskenysia (sp?) and it was horrible. I have to make an ASAP appt. for him Monday.
Thanks for prayers for us!
Prayers also appreciated for our financial situation – we’re doing okay but we got so behind both when Rog was laid off and I was on the one working, and then when he was working but I took a break due to the severe situation of the kids, that we are pretty behind. I’m about to put all our back bills on credit cards just to start with a clean slate because I don’t want any shutoffs. But you hate to do that too…
In the “small potatoes” category I really want to get my house cleaned up WELL by Tuesday afternoon for my weekly assignment wed. with RT. I worked a lot this last month with two unexpected large assignments (YAY!) from individuals (direct pay) and it was very worth it!! But I had never even caught up from Christmas [still have a Christmas tree up in the basement family room] and just need some time now to breathe and try and clean all the rooms well. I’m tired of tripping over things! To keep our sanity we just need to get our surroundings organized and I’d appreciate prayer that we could do that and keep it that way with everyone’s help in the home.
I also have temporarily (I hope only temporarily) lost my autism/deafness family picture blog due to moving servers (the new server so far has been unable to access my old servers files) and we’ve been unable to load the database even though it looks on paper simple as pie. This is 3 years of work (including old journals from another web site) and I had a lot of friends comments on there and some people who had asked for help with autism/deafness whose contacts will be lost if this blog is lost. I had just made it onto google and was getting some comments [though small and far between[ and now they’re getting a blank page. And i”m not sure whether to leave it blank and as is for the techs to work on or to make a new blank blog – not sure how to proceed. I know it’s a small thing but was so important to me – prayers on that appreciated!
And I have a bad headache today – had aches and pains yesterday half the day – and 3 people in my family have had a bad cold or flu and I’m surely hoping I’m not catching it.
I’m glad you are all here and that I still have this journal 🙂
(2020 as I’ll probably see noted in here later I did find all those blogs — they are pretty much merged in here now!!)
Is it a consipiracy?
There’s something about me making a decision, that means I will immediately second guess myself. It’s cold (we narrowly missed several more inches of snow with a lake effect snow warning being canceled); it’s probably still windy; Ryan has an ear infection, and was very crabby, crying, and irritable; and Chris is being ornery in his own way today [doesn’t want to move to do anything, won’t take his meds this morning, and who knows if I’d have got him out the door?]. So I decided to keep them home from the Saturday camp (twice a month, they go and swim and play and have crafts at a center in our area). So as soon as I make the decision, Ryan immediately acts more healthy. I say to myself, did I make the right decision? I gave up their playtime, and my quiet time, to keep them both home because I’m worried about Ryan’s health, and then he acts fine?
Yes, it’s a conspiracy to make me second guess my decisions. Should I have sent them? I’d have had my SHOWER then, and some quiet time. And they’d have had fun fun fun! But then of course, if I HAD sent them, I’d be second guessing myself again. (Is Ryan coughing more again? Did his fever come back (hasn’t had one since Monday), is he sneezing all over everyone, and are they behaving themselves or causing a big ruckus?
Ahh well. The fun of parenthood.
Powered by Qumana
(2020, had to add — with COVID-19 parents can never second-guess themselves again — what a world we are NOW living in!!)
the keyboard calls again —
and once again I’m getting addicted to transcription!
User: dori
Comments: copied update with some additions at the bottom as I’ve been too busy to post anywhere – hope everyone is well – I’m TIRED! but happy, mostly ;}
Hello! been working on all sorts of things, Trying to send from gmail again – we’ll see if it works. I reconfigured it. I found out today I wasn’t getting mail from a manager out at Rapid Text as well – I emailed them about it (I read about the emails on my board) and never heard back, so just called them and she found my emails in her spam folder! So I’m definitely hoping this gmail works as something seems goofy with sbcglobal!
Continue reading “the keyboard calls again —”
autistic toddler running into traffic
I am sure you may have already heard about it but it’s the mom who’s 3 year old ran into traffic. Just one of hundreds of stories http://www.wave3.com/Global/story.asp?S=5891420. I’ve read 1-2 of her kids are possibly autistic, that she is pregnant, that she’s suffering from depression, that she is on her 6th child (pregnancy), and that there was poop in her house. She is being slammed, and her myspace:
(2020 – empty space at this point as is the story, above) not always a good testimony for her (let’s say it’s really not at all a good testimony) but I just feel this woman needs some prayers.
Thanks — dori
(2020 – God knows who she is and still hears our prayers!!! Her kids are probably grown now, and Lord knows in what situation – with family? Group home? Grown to be more independent somehow and living on their own? God knows! Indeed. And prayers to them and all of us.)
First big snow – 8″ over two days!
SNOW DAY! Kids had a lot of fun outside. I actually wrapped gifts for almost an hour this morning before anyone got up. Then I washed dishes, then went outside with them. Now I need to cook lunch and clean office.
Less than two weeks of school left before break…
Fall fun
on a beautiful spring-like day!
What a fun day today! Several more pics on my sidebar, and also look at Thanksgiving pics (sample at bottom!)
Chris just wanted to get in the car! He finally got his way and dad got everyone Burger King!
Me looking goofy and disheveled – oh well, I probably usually look like this! I did have a migraine this morning so I probably look more tired.
Rog worked hard most of the day getting the leaves in one big pile for the kids’ to jump in 🙂
Ryan had a lot of fun with the leaves! It was a beautiful day here in Ohio – like in the 60’s or so! We got lights up in the front of the house and did lots of yardwork.
Colleen had a great time too even though she’s camera shy! But I did sneak this video in – on youtube. She helped her dad and enjoyed friends today as well.
Pretty Thanksgiving centerpiece at our dinner at Gayle’s. More pictures in the Flickr sidebar! It was our first dinner there since Colleen’s birthday party in May. I was glad everyone had a good time! We also had a birthday cake for Chris’s 16th birthday which was Tuesday the 20th.
New Youtube videos in addition to above, that I need to put on sidebar:
video of our Spice the hamster, RIP 2/06
video Colleen made of her favorite cartoon Inuyasha — this was an awesome video but it was deleted from You Tube because the cartoon maker claimed copyright on all those kind of videos (there were hundreds people made). 12/31/06
A pioneer has passed — but changed the world
https://www.latimes.com/archives/la-xpm-2006-nov-26-me-rimland26-story.html
God forbid if we’d have been told it was our fault about our children’s autism spectrum disorders. It’s hard enough without that burden.